T-cells are in
Hi all,
Derek received the modified T-cells on Tuesday. Pretty short infusion at the SCCA, and then two hours of being "watched" afterwards. Many labs were drawn.
After the cells on Tuesday, Derek had normal clinic visits Weds. Then around 1 AM at night I heard him say "Briana" from the hallway. I thought, hmm, that must have been in my dream that he was talking to me. But then I heard it again, and I realized he was talking to me. He needed to go to the hospital. Our first response was to drive on down, as we've done before. However Alpen and I both had colds. I couldn't really fathom waking Alpen up in the middle of the night and dragging him into the ER. When he was smaller, he could do that kind of thing, but now he's his own little guy! So Derek took an uber. (I guess i'm the only one that got caught up in the #deleteuber campaign...) He said that was the right call - I didn't miss a thing. He's got low blood counts and low platelets, so he is in the ICU. But maybe he'll move to a regular room tomorrow. No sign of a fever yet, the first indication of CRS, cytokine release syndrome, which they expect he will get a least mildly.
My sister Myra and her husband Mike just arrive at the Lovebuch homestead, and Alpy and I are on the mend from colds.
Derek received the modified T-cells on Tuesday. Pretty short infusion at the SCCA, and then two hours of being "watched" afterwards. Many labs were drawn.
Afterwards Derek was feeling well enough to go for a little stroll at Kubota Gardens. I'd never been there, but it was really beautiful. Alpen hated it however as can be seen from the pictures!
After the cells on Tuesday, Derek had normal clinic visits Weds. Then around 1 AM at night I heard him say "Briana" from the hallway. I thought, hmm, that must have been in my dream that he was talking to me. But then I heard it again, and I realized he was talking to me. He needed to go to the hospital. Our first response was to drive on down, as we've done before. However Alpen and I both had colds. I couldn't really fathom waking Alpen up in the middle of the night and dragging him into the ER. When he was smaller, he could do that kind of thing, but now he's his own little guy! So Derek took an uber. (I guess i'm the only one that got caught up in the #deleteuber campaign...) He said that was the right call - I didn't miss a thing. He's got low blood counts and low platelets, so he is in the ICU. But maybe he'll move to a regular room tomorrow. No sign of a fever yet, the first indication of CRS, cytokine release syndrome, which they expect he will get a least mildly.
My sister Myra and her husband Mike just arrive at the Lovebuch homestead, and Alpy and I are on the mend from colds.
Most delightful Alpen arm swinging in movie-quality light photo ever! Seems like it was the calm before the storm... Tough report, grateful that you took the time to write it, Bree. Sounds like this little post-transplant bit is really living up to its reputation. Hang in there. We love you!
ReplyDeleteThanks for the update. Thinking if you all and sending love. M and m
ReplyDeleteSounds like your treatment is proceeding as expected, and doing what it’s supposed to do. That seems reassuring, but it doesn’t stop you from feeling miserable in the meantime. Hope it helps to know that your cheering squad is behind you 100%.
ReplyDeleteSending y'all love from back east! Those gardens look pretty awesome.
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