Lovebuch family happenings

Due to my lingering cold, that has decided to start giving me fevers in the middle of the day, we have delayed the chemo til Friday. At my appt yesterday, Dr. Cassaday was not pleased when my temp was 101.5. I still wanted to get the ball rolling on the chemo and I wasn't feeling that poor besides the temp. so he bargained that as long as things looked good overnight in the morning I could go in today. The morning didn't start off that good. I woke at 6 am and started a coughing fit that gave me bloody noses on each side. Once I figured out what was going on in the low light and after some blood had gotten on the sheets, I moved to the bathroom for kleenex. At this point I was pretty awake, so I moved to the living room and watched ESPN.  I checked my temp twice this morning, no fevers, so I called the nurse around 9 and she gave me the go-ahead to go in the hosp for the 1pm arrival. But as the morning wore on I felt crummier and then after walking down to light rail, I just ha

We got the scan results back on Friday. There was no detection of disease in the marrow: so I went from barely traceable to not traceable. That’s good news. However, the tumors shrunk but didn’t go away. My right abdomen leukemic mass shrunk to a size of a walnut, the left abdomen showed no activity from the PET scan, so were not worried about that one. Interestingly, the facial tumor showed activity in the PET scan --which I had thought was outa the picture, incorrectly so-- thus we’re assuming this one is still active (although small) We talked about options and decided that the most logical one was to run it back: do the same 28-day EPOCH and Inotuzamab course and see if it will knock the tumors down even more. It makes sense because I tolerated the treatment fairly well -- I didn’t even bottom out for neutrophils this time, and most importantly my liver didn’t flare up.  I still had fatigue and I lost most of my hair so it’s not like it’s nothin. The hair loss was surprising: