up(dates) and a video
I have an appointment later today, and I will update if things change. But I doubt any of the main dates will change and I realized I didn't update on the current plan from last week. Cells were extracted successfully on August 1st. They were then frozen and sometime this month, they will be unfrozen and then engineered and multiplied into an army of CD-19 destroyers. The dates I was given are as follows:
Car-t cell chemo: Sept 13-15 (to knock off some of the current t-cells and make room for the new ones).
Car t cell infusion of my engineered cells: Tues, Sept 18
Watch, observe, daily clinic visits: Sept 19-30+
Today, I hope to iron out some more off the specifics and plans. I hope to go through the plan for different scenarios depending on my response to infusion. This month I have Dr. Turtle, a friendly Australian doctor, who is the PI for the trial. This is the guy with all the knowledge and answers to specific trial questions. And while many answers haven't been reported in the journals, he might be able to talk about some of the trends he has seen at the SCCA. Looking forward to meeting with him this month. Next month I will have a new Physician, as they rotate.
Outside of health stuff, it was a very successful wedding weekend extravaganza for our friends, Louis and Anna. We celebrated their partnership through a lovely ceremony on the shores of Lake Washington and a great reception at the Mt. Baker community center. Great time to see friends, relax, and laugh a lot.
Here is the video of car-t cells that is a quick minute and a half explanation of the process.
And a photo from the wedding of Briana and I, near the ceremony spot.
Car-t cell chemo: Sept 13-15 (to knock off some of the current t-cells and make room for the new ones).
Car t cell infusion of my engineered cells: Tues, Sept 18
Watch, observe, daily clinic visits: Sept 19-30+
Today, I hope to iron out some more off the specifics and plans. I hope to go through the plan for different scenarios depending on my response to infusion. This month I have Dr. Turtle, a friendly Australian doctor, who is the PI for the trial. This is the guy with all the knowledge and answers to specific trial questions. And while many answers haven't been reported in the journals, he might be able to talk about some of the trends he has seen at the SCCA. Looking forward to meeting with him this month. Next month I will have a new Physician, as they rotate.
Outside of health stuff, it was a very successful wedding weekend extravaganza for our friends, Louis and Anna. We celebrated their partnership through a lovely ceremony on the shores of Lake Washington and a great reception at the Mt. Baker community center. Great time to see friends, relax, and laugh a lot.
Here is the video of car-t cells that is a quick minute and a half explanation of the process.
And a photo from the wedding of Briana and I, near the ceremony spot.
So sad we missed that wedding! It sounds like it was just perfect -- glad y'all had so much fun. Hope you were able to get some of your questions answered at your appointment!
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