Tuesday update: no hospital this week, awaiting car-t acceptance and information next week

No hospital this week. Plan was discarded because I got onto the CAR-T trial early, so CAR-t team are seeing me next week. Therefore, we went with a little chemo (Vincristine) yesterday to try to keep the leukemia at bay, but not remove it all. I find out Friday through a bone marrow if the plan worked, and the Vincristine reduced, but didn't eliminate the leukemia cells. If there is still any amount of leukemia found, I can be accepted to the trial and resume the Car-t plan. I will write more about that after I meet with them.
We had a nice stay in Portland. Alpen was not afraid of fireworks, which was good cause there were many. He was fun, and cheery, and walking around a bunch. I unfortunately came down with a bad cold and spent most of the time  coughing and sneezing and drowzy from meds. It was really nice to have help from grandparents in this kind of state and Peggy and Byrne stepped up to the plate to help us out. Peggy even got up early one morning to watch alpen while we slept in to 9 am! That was the longest I have slept-in in more than a year I believe. So that was great. We also watched the quarter final world cup games on Friday and Saturday. Whew. Those were some good games. With the soccer done, we drove back on Saturday evening. I awoke Sunday feeling much refreshed and spent some time in the day doing some yard maintenance and house tidying.
Monday I met with Dr. Shustov to go over the new plan and then later in the afternoon I received the Vincristine through an IV.  Nothing too exciting there, usual stuff, felt a little sick afterwards, but not too bad, just mild hangover kinda stuff. It does suck to keep having so many unknowns rule my schedule tho e.g. how will I respond to the vincristine? What will the bone marrow be on Friday? How fast does my leukemia spread? How long can I wait before starting the car-t infusion? How will I feel and will I have a bad reaction post-infusion?  Such is life with leukemia I suppose. For now, I'm home (and watching the semi-finals) before I get results from a bone marrow on Friday.