Consolidation Week 2
I've spent this week mostly at the Seattle Cancer Care Alliance clinic getting platelets, getting bone-marrow-stimulating shots, checking blood counts, and getting the daily chemo through the Ommaya. I even forgot about the Peg-L-asparaginase on Monday. Luckily, no side-effects to report from the Peg-L. My blood counts plummeted as predicted from the cytarabine, pushing me into the neutropenic zone (sub-500 neutrophils) for the first time a few years, and also lowering my platelets. But we were able to keep the platelet count safe with the combination of infusions and the growth factor. We're also trying IVIG (intravenous immunoglobulin) therapy to see if it will raise my platelet count. IVIG is pretty cool in that it's a bag of pooled anti-bodies taken from the plasma of thousands of donors. IVIG is used to give some people makeshift "immune systems", who can't make their own antibodies, but its also used to calm down auto-immune disorders like my platelet auto-immune issue. I wouldn't mind if it did a little extra work on this cold I still have. Unfortunately, the IVIG takes forever to infuse--right at 8 hours yesterday-- but my Dad has been keeping me company and Briana came to the rescue last night, bringing sandwiches. We settled in for the evening in the infusion room, and watched the Seahawks. Today, I hope to get out of here by 9:30, in time to ride with Louis to pick up Petey from the airport. It's not looking good though since we haven't event started the IVIG yet and its 3:00 pm. Hopefully this weekend will be end of my nadir and my counts today will improve by Monday, Thank you to everyone who has gotten their flu shots, donated plasma, and donated platelets!
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ReplyDeleteI hope you boyzzz totally broed out this weekend! (past tense of "bro?" IDK...) Also hoping your platelets are doing some broing out/increasing as well.
ReplyDeleteReading your blog is surely increasing our vocabulary and exposure to scientific concepts by the powers of ten! Sounds, too, that there are many hours of waiting and watching plastic bags getting smaller by the drop. Thank you, as always, for the update. Sending our best to you and Bree. The ems
ReplyDeleteHoping this week is easier than last, with fewer hours spent at the clinic. I'm always available for a food delivery!!
ReplyDeleteHoping this week is easier than last, with fewer hours spent at the clinic. I'm always available for a food delivery!!
ReplyDeleteFirst off, I read your blog more than I am successful at commenting on your blog! Thanks again for keeping the rest of us informed about what's going on. You help us understand the medical part AND the mental part. On the medical side, gotta love the "Peg L" right??!! And hopefully no side effects from either of the Peg-L's in your life!! As always, I am beyond impressed with how you are dealing with such a challenging time in your life. You and Bree are strong individuals and a strong team. Carry on Derek and know that we are sending supportive vibes throughout each day. Peg-L!!
ReplyDeleteThinking of you from Portland, D! Hope this week has been better and that the platelets are rockin it. I hope I can catch a quick visit in a few weeks when I'm up in Seattle, but either way it's great to be able to check in with you via the blog!
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