Posts

Showing posts from September, 2019

9-26 return of fall

Image
The hospital discharge went fine. I got out Saturday morning as expected. I had some great visitors while in the hospital which made it a much nicer stay. Zach, Rahn, Ben, and Dan came by on Friday afternoon and we played “Bang,” a fun dice game. Briana soon followed that. And then post dinner, Louis and Kevin came by for a chat. All the attention made the time fly and thankfully I was feeling good enough to enjoy it. Surprisingly I slept pretty well too, despite the stress and the steroids. My many nights have taught me that a good eye-mask is a hospital essential.  Then on Saturday morning, Spencer, my oldest friend, popped over with Jackson, his 1 year-old, again proving that a hospital room is not a great place for a curious waddler. Great to see him and his kid tho, despite having to make an early exit. Later on Saturday, we went to a solstice party of one of Briana’s co-workers in West Seattle. Alpen went up to Edmonds to stay with my mom, allowing us the freedom to both be pr

9-19-19 some eye closing experiences

Image
Things have taken some unexpected turns for the worse in the last 3 weeks so I didn't want to write until we closer to the bottom of it.  Short story, my leukemia has been feeling restless and has set-off out of the bloodstream to colonize new soft tissue territory throughout my body. And then multiply there. This is not unusual for this Leukemia to take on this lymphoma form. And it doesn’t often change the treatment either. The tumors respond to chemo and immunotherapy just like their counterparts in the bloodstream. Technically my disease is Acute Lymphoblastic Leukemia-lymphoma, so it’s not leaving its wheelhouse. I’m glad I have had some experience with a tumor as to stop me from really freaking out. I had a tumor behind my ear in 2017, an even scarier location being in the CNS, that dissipated with a few rounds of steroids and methotrexate to the CNS.  But currently, a CT scan done yesterday of my abdomen and chest show multiple pockets of tumors throughout the region. And th