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Showing posts from June, 2019

6/28 back in the hospital

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I’m back in the hospital and it sucks. Well the situation sucks, the hospital is a good thing - safe environment to take this new drug and a big room: I’m back in 8SA with a montlake view. Getta see the sailboats and crew teams practice throughout the day. I’ve been here for 3 days already but was too feverish and tired to write. My nurse last night was the first nurse I had in this unit back in 2012. We both remembered each other because I was her first patient in a brand new unit (I was the first patient in that room) and she was my welcome-nurse to UW, so memorable for me.  We’ve both aged and now have 2 year-olds. Just another clock of how time passes. Now for the situation. After our trip to Mexico in March, my bone marrow came back with 0.06% cancerous cells. I was really hoping to get a year out of the CAR-Ts but I only got 6 months. Just like the transplant, 6 months remission again. The presence was startling cause I felt fine--you can’t feel cancer loads that low--but tha